I can’t afford to feed my daughter …

United Healthcare: Cover baby formula for special needs children

Emi Clayberg
Tulsa, Oklahoma

My beautiful daughter Vivian was born 3 months premature and spent 4 months in the NICU. She survived, but never learned to eat and requires a special formula that costs $290 a case. Our insurance company, United Healthcare, refuses to pay for this.

Vivian was diagnosed with dysphagia and reflux and had to undergo multiple surgeries – including having a g-tube inserted.  She gets 100% of her nutrition through the g-tube and due to absorption and food tolerance issues, the formula that works best for her is “Pediasure Peptide 1.5.”

We thought our insurance would cover it – but after months of purchasing the formula, we received news that United Healthcare was not paying for it – in the form of an $8,000 bill. My family is now in a panic worrying about how we are going to feed our daughter. She needs 6-7 cases a month – about $2,000. That is my entire paycheck.

Just a few years ago, United Healthcare posted a net earnings of $5.142 billion – they can afford to cover this for families that need it. Health insurance companies are susceptible to public pressure — and we believe that with enough signatures, United Healthcare will change its policy — not just for our family but for others, too. Thats why I need you to sign my petition.

Vivian is the most grateful little girl you could ever meet. She is so sweet to everyone and it breaks my heart to see her so physically delayed because she is not getting the medical care she needs and deserves.

Please sign our petition to United Healthcare demanding they cover special formulas like the one that Vivian and other children like her need to survive.

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