By Eco Wade Missouri City, Texas
I have a 7year old daughter who keeps getting denied for disability because, they claim that her disease is not life threatening. Neveah has Mixed Connective Tissue Disease which is an autoimmune disease that consists of Lupus(blood), Scleraderma (skin), polymyosistis(muscle).She receives Highdose IVIG once a month this treatment costs approximately 40,000 a treatment.
My daughter has almost died six times since 2011 due to this illness. Neveah had been hospitalized since October 2011 every two weeks up until April of 2013 in Florida. My daughter fights for her life on a day to day basis, she can’t attend regular school because her immune system is so compromised that a common cold will kill her.
We have been fighting with Social Security since 2011. They keep denying her saying that her disease is not severe enough. How severe does her disesase have to be for something to be done about this, I barely can work because, I have to call off all the time when my daughter is ill. An employer will only tolerate so much of this. I want to be able to provide for my household, but its hard when you don’t have any outside help.
If my daughter was getting social security, I would be able to hire her a caregiver to stay with her so I can be able to provide for my family.These agencies won’t even look at Neveah because she has continously been denied. The government says that they want us to become self-sufficient but, how can you become self-sufficient when they won’t approve your loved ones. Although they may think that these illnesses aren’t life threatening. How would you know if you don’t take the time and research them. I don’t understand this overrated system. This is supposed to be the land of the Free and The home of the Brave. But they belittle the ones that are trying to provide for their households the right way. Then they wonder why crime is on the rise. Now a days people are doing what they need to do to survive. Shame on you all for keeping us from being able to hire caregivers to take care of our loved ones when we are out here, just trying to provide for our families. It’s sad that Social Security will approve someone that is defrauding the government, but they won’t approve a terminally ill 7year old, that obviously needs the help. To assist with her caretaking. As a mother I felt I did what needed to be done. When they gave my daughter 5years left to live. I just didn’t take no for an answer, I searched for other options. I uprooted my whole family for the best interest of my daughter. Alot of us would have through the towel in a long time ago. But, not me I have subjected myself and my family to now live in poverty to make sure that my daughter is getting the best care here in Houston. The least that could be done is her disability be approved so I can get out and provide for my family like I was back in Florida. That’s all I ask is that too much.
Please sign this petition to get my daughter approved for her disability and what she really needs to help her live a somewhat normal life. So that I can provide for my family.