Tag Archives: referendum

Oncologist had discussions with Merck this week, and they rejected our request


Greetings from Mikaela & I, especially to the 200,000+ who’ve joined our team since our previous email update! At 405,000, we now outnumber our old hometown of Oakland, CA!

For both new and established #WeGotThis members, it’s essential that you join us on Facebook (https://www.facebook.com/savemikaela), our blog (http://shegotthis.wordpress.com/), and Twitter (https://twitter.com/keithknappjr). We post regular updates and requests for help on these pages, and you’ll miss great shareable content like the #WeGotThis video (http://bit.ly/QMzfPB) if you don’t join us!

You’ll find an update on Mikaela’s health & campaign progress later in this email, but we urgently need your help:

1. Mikaela’s Million — We are working with the change.org folks on planning a day for us to deliver your petitions directly to Merck. Because doing this will require me to leave Mikaela, I want to maximize the impact by having 1,000,000 petitions to hand over. If each of you can get 1-2 of your friends or family to sign the petition, we’ll be able to hit this number easily. Please do it today; Mikaela does not have time to wait.

2. #WeGotThis shirts — Inspired by successful campaigns of the past, we are selling #WeGotThis t-shirts to help fund our campaign. They were designed by Mikaela herself and are available for $15 at http://teespring.com/mikaelaknapp. They are only available until Tuesday (April 8), so buy yours today! The petition URL is on the back of the shirt, so these will be a great way to spread the word with your local community.

3. Social Media Crew: We want to start engaging directly with Merck through their social channels, but we need your help to amplify our noise. If you’re interested in getting involved with this effort, please shoot me an email (keithknappjr@gmail.com) and I’ll add you to our #WeGotThis social media email list. You’ll be prompted to share things like ready-made tweets, so it won’t be a huge time commitment. Before you sign up, please understand that Mikaela & I value the positive tone of the campaign, and will in no way be asking you to attack these companies through their social channels; in fact, we wholeheartedly discourage it.

On to the updates:

First, Mikaela’s health — SHE’S BACK HOME! It always takes her several days to recover from a hospital stay, so she ought to be fully settled by the end of the weekend. We posted a picture of her triumphant return on the #WeGotThis Facebook page, which you should definitely be following for more regular updates than these emails — visit https://www.facebook.com/savemikaela and hit that “LIKE” button right now!

Our fundraiser (http://gfwd.at/1hTL25D) has been a success and we should have our genetic test results within 2 weeks! Thanks to all who donated and those who continue to do so!

Next, an update on our campaign: We’ve had a productive, yet unsuccessful, week of seeking entry into more clinical trials, and we now feel comfortable saying that we have lost all hope on that front. We are shifting the entirety of our efforts to arranging compassionate use with Merck.

Just to be clear, Mikaela’s return home does NOT mean that we have won access to the treatment she needs. Our oncologist had discussions with Merck this week, and they rejected our request for compassionate use. We are not giving up, and our Congressman’s office is working with Merck & the FDA to find ways to assuage their concerns.

Thanks for your continued love and support. Mikaela & I are overcome by the personal level of interest many of you have shown in our cause. Your stories of not giving up and beating cancer fuel our fight, and you’re all playing an essential part in helping us to craft a similar story of our own someday.

With hope for a great week.

#WeGotThis,
Keith

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Miami Cop Shoots and Kills Homeless Man in a Park in Front of Dozens of Kids- reminder


curi56's avatarcolouredjustice.wordpress.com

A Miami police officer shot and killed a homeless African-American man in front of up to 60 witnesses including children attending summer camp. Police officials said the violent suspect refused to drop a metal pipe he was holding. Miami Police Chief Rodolfo Llanes said officers were responding to a report of a violent dispute on Thursday morning. He said several dozen people were in Gibson Park, many of them children, who may have witnessed the events that unfolded. “I understand the anxiety that’s been created across the country from police-citizen interactions, but I would ask that everyone, wait for the facts of the case and not make up your own story,” Llanes told reporters. “We will know what the facts of the case are.” The chief added that the officer involved in the shooting, who is a 20-year veteran of the department, will be reassigned to administrative duties pending the…

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Blue Cross rejecting payments for HIV/AIDS medication


Mike Reitz: Stop AIDS discrimination by Blue Cross/Blue Shield of Louisiana.

    By Robert Darrow

            Shreveport, Louisiana

Due to a new policy from Louisiana’s largest health insurer, hundreds of people living with HIV and AIDS are in danger of losing access to essential medication.BlueCross BlueShield of Louisiana (BCBSLA) is rejecting checks from a federal program designed to help these patients pay for AIDS drugs and insurance premiums and has begun notifying customers that their enrollment in its Obamacare plans will be discontinued because it will no longer accept “third-party payments.” This funding was established through the Ryan White CARE Act of 1990 which has been crucial to ensuring that those living with HIV and AIDS can gain access to the medication they need.Several months ago, the Centers for Medicare and Medicaid Services (CMS) encouraged health plans to stop accepting “third-party payments,” but this weekend (February 8th), CMS stated unequivocally that “federal rules do not prevent the use of Ryan White funds to pay for health care plans.” BCBSLA said it is “reviewing and considering this new information,” but we need commitments to help save and extend hundreds of lives in Louisiana.

As someone living with AIDS who helped found the local organization in Shreveport that oversees Ryan White funding, I know these funds change lives — and I’m afraid that if BCBSLA gets away with denying this coverage, other insurers across the country could follow suit. Please join me in tell BCBSLA to accept federal funding for people living with HIV and AIDS and to stop this discrimination.

The NFL


TheNFLCongress: Revoke the Tax-Exempt Status of the National Football League

By Lynda Woolard
New Orleans, Louisiana

Despite the fact that it is a $9Billion/Year industry, the National Football League (NFL) continues to enjoy status as a non-profit organization — meaning it doesn’t have to pay federal corporate taxes.

The Commissioner of the NFL, Roger Goodell, makes nearly $30 million a year — earning more than the heads of companies like Coca-Cola and Wal-Mart. Through TV deals alone, the NFL has inked nearly $30 billion with various television networks. And so often, fans like you and me are asked to foot the bill for new stadiums through our own taxes.

Yet despite being the most profitable sports league in the entire world, the NFL does not pay federal taxes.

The NFL should pay their fair share towards our economy! Just like Major League Baseball, which gave up its nonprofit status in recent years, as well as the National Basketball Association, the NFL should not be able to hide under a nonprofit status in order to avoid paying federal taxes.

The NFL has methodically worked to shift all the power to their side, leaving players, employees and PARTICULARLY THE FANS little say in what goes on with the league. We deserve a say, but do not wish to boycott our teams! Therefore, we are calling on our elected representatives to revoke the tax-exempt status we bestowed upon the league half a century ago. Please sign this petition, and let Congress know that you want them to reconsider the NFL’s tax exempt status.